Yu-Hsin Hung, Music Therapist/Research Assistant/ International Center for Wound Repair and Regeneration, National Cheng-Kung University, Taiwan
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This case study discusses several unusual aspects of the care of a Taiwanese 32-year-old female patient with severe Recessive Dystrophic Epidermolysis Bullosa (RDEB). Evidence demonstrates the unmet psychological and social needs of this population, with some RDEB patients having a high level of psychological, social and economic vulnerability. In March 2021, the patient was admitted to the Hospital of National Cheng Kung University for a 14-day medical treatment. Music Therapy was provided during her stay in the hospital. Art-based interventions effectively guided the patient to express her feelings and thoughts. We witnessed the patient suffer significantly from the limitations on her daily lives. The patient was observed to show inconsistent behaviour during the sessions, indicating that expressing her emotional and psychological needs was still difficult for her. This study will demonstrate the self-integration process embodied through music and artworks in improving the patient’s psychological resilience for her overall well-being.